So..it is a bank holiday Monday here in the UK... and sadly I am not too well so I shall be away for a day or two
The End
I am a mother first and foremost . I have many children , one of whom has profound learning difficulties. this is my chance to express how life with him works...or doesn't!!
Monday, 2 May 2016
Saturday, 30 April 2016
Blogarhythms of life
So...here we are on a sunny morning with a three day weekend stretching out ahead..poor unsuspecting Jboy, condemned to three whole days of parental input!!!
So, what has been happening here? Well, yesterday the Iron Lady came. No. Not THAT one. That would just be weird. The nice one. The one who decimated my ironing pile into neat and sharply pressed shirts. Such a gem. Never has this house seen such well ironed clothes...well, not since a lovely chum took my ironing over when Jboy was a poorly baby and ironed for England on a weekly basis for many a month. Lovely chum.... You know who you are!!!! Can never thank you enough for the very much needed support at that time. Hugs.
What else? Well, the chunky deer , Mr and Mrs Chunky Deer to be precise,appeared yesterday evening for a nice evening snack of lilac, a morsel of rose, a chomp of tulips and finishing off with an amuse-bouche of bluebells. The garden is definitely resembling a deer park with bushes and trees nibbled to a certain height and tulips and now bluebells eaten down to mushy stumps. I am trying to be generous and deerly selfless but my smile is getting a little fixed now and is becoming more of a grimace as my garden disappears into the jaws of two clearly well fed deer.
In the bathroom where Jboy has his bath, we have a small mirror. One side is a normal mirror but the other is a scary giant mirror. Well, the mirror itself is an ordinary size but the image you see is HUGE. Normally, the mirror is set to the ordinary side but, for some reason this morning, it was on its giant setting. I did not know and unsuspectingly peered myopically into it only to find a giant eye staring back. Not only that but the eye was set in a face ,ploughed with lines. EEWW....what has happened to my face overnight???? Surely I still have the skin of a 26year old?? (The skin of someone LIKE a 26 year old not the actual skin of a 26 year old...that would be disgusting)No. It was definitely mine. Clearly, the combination of my myopic eyes and the unmagnified nature of the normal mirror have led me in to a false sense of security. Right.....where's the Polyfilla?????
Well, it is time to coax (that's a weird word.....) Jboy into doing something that we can all endure, I mean enjoy!!! HEE HEE.
HAPPY SATURDAY!!
The End
So, what has been happening here? Well, yesterday the Iron Lady came. No. Not THAT one. That would just be weird. The nice one. The one who decimated my ironing pile into neat and sharply pressed shirts. Such a gem. Never has this house seen such well ironed clothes...well, not since a lovely chum took my ironing over when Jboy was a poorly baby and ironed for England on a weekly basis for many a month. Lovely chum.... You know who you are!!!! Can never thank you enough for the very much needed support at that time. Hugs.
What else? Well, the chunky deer , Mr and Mrs Chunky Deer to be precise,appeared yesterday evening for a nice evening snack of lilac, a morsel of rose, a chomp of tulips and finishing off with an amuse-bouche of bluebells. The garden is definitely resembling a deer park with bushes and trees nibbled to a certain height and tulips and now bluebells eaten down to mushy stumps. I am trying to be generous and deerly selfless but my smile is getting a little fixed now and is becoming more of a grimace as my garden disappears into the jaws of two clearly well fed deer.
In the bathroom where Jboy has his bath, we have a small mirror. One side is a normal mirror but the other is a scary giant mirror. Well, the mirror itself is an ordinary size but the image you see is HUGE. Normally, the mirror is set to the ordinary side but, for some reason this morning, it was on its giant setting. I did not know and unsuspectingly peered myopically into it only to find a giant eye staring back. Not only that but the eye was set in a face ,ploughed with lines. EEWW....what has happened to my face overnight???? Surely I still have the skin of a 26year old?? (The skin of someone LIKE a 26 year old not the actual skin of a 26 year old...that would be disgusting)No. It was definitely mine. Clearly, the combination of my myopic eyes and the unmagnified nature of the normal mirror have led me in to a false sense of security. Right.....where's the Polyfilla?????
Well, it is time to coax (that's a weird word.....) Jboy into doing something that we can all endure, I mean enjoy!!! HEE HEE.
HAPPY SATURDAY!!
The End
Wednesday, 27 April 2016
Wednesday's chatterings
So....I know I can be stroppy. I know I can be stubborn. I know I can be singleminded. I apologise to all and any of you whom I may have offended in any way..especially through this anonymousish medium of the blog.
I used to be the shyest and most timid of people, blushing redder than a tomato at all times.(I know some of you who have seen me in full on performing mode might find this hard to believe...but 'tis true!!) I have found that I have got stroppier, more forthright over the years and especially when it comes to my children. I have had to stop many a medic or educator in Jboy's life to ask them exactly what they meant by one acronym after another. Often they assumed I knew exactly what they meant because M was M and does the job he does. I didn't. It is SO important for parents to understand exactly what is going on with their child. If you don't understand...ASK!! It is your right, surely?????Or am I just being stroppy again? And, professionals, not everyone knows exactly what you mean..please spare a thought for us!! We're not stupid..we just aren't you.
It's a funny old thing..this life thing. This ageing thing. The silver haired old biddy who stares back at me from the mirror can't possibly be the same shy, retiring, wouldn't-say-boo-to-a-goose person that I was, surely??? But, yes. One and the same....and yet strangely not. I suppose that life colours and shapes us as we go along. Much like a river will shape the landscape as it flows through. Perhaps that is where the idea of 'going with the flow' comes from. That shy person still does exist in me. She is still in there. She has just changed.
I think that's how we do life...always changing and being shaped by experiences, people etc etc. There's that analogy of still water and moving water, one stagnates and the other is full of life and oxygen.
I choose life...as the Captain from WallE says, 'I don't want to just survive. I WANT TO LIVE' (maybe a slight paraphrase there!!) So I take my silver hair and my shyly hiding alter persona and splish splash splosh!
The End
I used to be the shyest and most timid of people, blushing redder than a tomato at all times.(I know some of you who have seen me in full on performing mode might find this hard to believe...but 'tis true!!) I have found that I have got stroppier, more forthright over the years and especially when it comes to my children. I have had to stop many a medic or educator in Jboy's life to ask them exactly what they meant by one acronym after another. Often they assumed I knew exactly what they meant because M was M and does the job he does. I didn't. It is SO important for parents to understand exactly what is going on with their child. If you don't understand...ASK!! It is your right, surely?????Or am I just being stroppy again? And, professionals, not everyone knows exactly what you mean..please spare a thought for us!! We're not stupid..we just aren't you.
It's a funny old thing..this life thing. This ageing thing. The silver haired old biddy who stares back at me from the mirror can't possibly be the same shy, retiring, wouldn't-say-boo-to-a-goose person that I was, surely??? But, yes. One and the same....and yet strangely not. I suppose that life colours and shapes us as we go along. Much like a river will shape the landscape as it flows through. Perhaps that is where the idea of 'going with the flow' comes from. That shy person still does exist in me. She is still in there. She has just changed.
I think that's how we do life...always changing and being shaped by experiences, people etc etc. There's that analogy of still water and moving water, one stagnates and the other is full of life and oxygen.
I choose life...as the Captain from WallE says, 'I don't want to just survive. I WANT TO LIVE' (maybe a slight paraphrase there!!) So I take my silver hair and my shyly hiding alter persona and splish splash splosh!
The End
Tuesday, 26 April 2016
gymtastic 2
So..today I went to the gym to be induced..that doesn't sound right..inducted...is that right?? Well, whatever happened, I was shown around the machinery in the gym bit and instructed as to how to use the things. Then I was let loose on the machines ALL BY MYSELF!! It wasn't as terrifying as I had expected..mainly because my lovely chum came with me this first time. She went off and did her own thing while I plodded up a small incline on the treadmill thing, cross-trained on the cross-trainer (I am hoping it will be in a better mood next time...hahaha), rode a static bike up a small hill and row, row, rowed a boat very gently down an imaginary stream. I used up the calories equivalent to that of a banana which I quickly replenished on my return home. All in all, not as bad as I had thought it would be and certainly not bad enough to merit the 'exam' tummy I had earlier today when thinking of the whole event! In fact, I find myself looking forward to the next visit...weird!!!!! Now ,it is hailing outside and my washing is hanging forlornly and coldly on the line where moments before it had been blowing happily in the cool April sunshine..do I rush out and bring it in or leave it for a while? I can see a small patch of blue (enough to mend a sailor's pair of trousers as my mother used to say) which might herald a dry spell soon.....old wives tales, eh??
Jboy was on form today, amusing and amused, doing his own version of Tai Chi as he got into the bath and singing along-a musical toys (with his own drone like vocalisation..which is lovely as he doesn't vocalise much at all). Here's hoping he has a splendid day at the Most Marvellous Day Centre with all the marvellous peeps and , of course, the Right Bus!!
The End
Jboy was on form today, amusing and amused, doing his own version of Tai Chi as he got into the bath and singing along-a musical toys (with his own drone like vocalisation..which is lovely as he doesn't vocalise much at all). Here's hoping he has a splendid day at the Most Marvellous Day Centre with all the marvellous peeps and , of course, the Right Bus!!
The End
Monday, 25 April 2016
gymtastic
So..courtesy of the MMSWW I have successfully managed to join the gym....what????Who am I??? What have I done???? whose idea was this anyway???? Mind you, joining the gym and then actually going to the gym are two different things. I am sure I am suffering the same feelings as many people .... am I?? Tell me I am. I once was fit and strong but now I am older and weary...but I want to be older and stronger so that I can continue to wrestle with the Boy for as long as I need to, I can continue to care for him and hoick him about as he needs to be hoicked (is that a real word???)(Pause while I look it up...) (YES it IS a real word) See definition below:
Did You Know?
Etymologists suspect that "hoick" is an alteration of the verb "hike," which is itself akin to "hitch." "Hike" entered the language during the first decade of the 19th century, whereas "hoick" appeared near that century's close. The word hoick can be used for any type of abrupt pulling movement but is commonly used for the sudden pulling back on the joystick of an airplane; a rough, jerky movement when rowing; and a jerky, elevated shot in cricket. In fox hunting, the word hoicks is used to call attention to a hound that has picked up the scent and to bring the pack together.
oooh this blogging lark is SO educational!!!
I DO like words. Being a bit of linguist, I used to drive my children a bit mad by saying things like....'Oooh now that's interesting, this word means xxxxxxx which is from the French/German xxxxxx, meaning xxxxxx. It has the same root'. Give us examples !!! I hear you cry. Well, the word WINDOW is from the Norse word 'vindauga' meaning wind eye.....interesting!!! (neither French nor German but interesting)Of course my mind has gone completely blank for other examples....(searches the deep recesses of the brain)...(nope...nothing there)
Anyway I need to be strong to be able to cope with my Boy who is not getting any smaller so tomorrow I shall venture forth to the Leisure Centre and put on my bravest hat and see what happens. This might be where I say, 'I am going out, I may be sometime'....WHAT HAVE I DONE?????
The End
oooh this blogging lark is SO educational!!!
I DO like words. Being a bit of linguist, I used to drive my children a bit mad by saying things like....'Oooh now that's interesting, this word means xxxxxxx which is from the French/German xxxxxx, meaning xxxxxx. It has the same root'. Give us examples !!! I hear you cry. Well, the word WINDOW is from the Norse word 'vindauga' meaning wind eye.....interesting!!! (neither French nor German but interesting)Of course my mind has gone completely blank for other examples....(searches the deep recesses of the brain)...(nope...nothing there)
Anyway I need to be strong to be able to cope with my Boy who is not getting any smaller so tomorrow I shall venture forth to the Leisure Centre and put on my bravest hat and see what happens. This might be where I say, 'I am going out, I may be sometime'....WHAT HAVE I DONE?????
The End
Sunday, 24 April 2016
am I dreaming??
So...I was Parent on Duty this morning. I had heard Jboy and had gone to him and was sorting him out when M poked me gently and said,'The Boy is awake'...weird!!! I had been dreaming that I had heard him and gone to him whereas in fact I was still cosy and snug in my bed. It was a most bizarre sensation. I had had a similar experience when Jboy was a baby and newly home from hospital. We had had lessons on baby resuscitation (scary) and Jboy was issued with an apnoea monitor which ,if you are fortunate enough never to have come across ,is an instrument which told us when/if he stopped breathing. This was taped permanently to his little body and went everywhere with us. Once, I was walking home from school through the park with the Three when all of a sudden there was an alarming beep from within the pram. It was one of those old fashioned upright type prams that someone had kindly given us. I ripped off the covers, heart pounding with fear while trying to maintain a calm front for the Three and exposed the poor wee chap to see if he was still with us or not. He was, The monitor had merely become detached.
I digress.... the awake/asleep episode was another weird moment...Jboy had the small room next to ours and one night I heard the sinister beeping from his room. I was completely exhausted (no change there then!!) and thought I had got out of bed and was with him in his room when I became aware that the beeping was still going on and I hadn't got out of bed at all..I was still there. I was now in a panic that I had left it too long and that he might really have stopped breathing so I got out of bed and ran to his room. The beeping continued because I hadn't actually woken that time either....when, eventually I really DID wake up and really DID get to his room...the monitor had become detached and all was well with the Boy. It reminds me of the film with Leonardo di Caprio about dreams and levels of dreams possibly called Inception...I just didn't know what was real and what wasn't. Weird. M can actually wake himself up if he is having a bad dream. How does he know???? Dreams and sleep are interesting,..sometimes I have very busy dreams and wake up exhausted...sometimes I have lovely dreams and wake up all calm and serene. But I am not aware that I am dreaming, or if I am ,I am not aware that I am aware......or maybe it's just me. Oh well. All's well that end's well etc
The End
I digress.... the awake/asleep episode was another weird moment...Jboy had the small room next to ours and one night I heard the sinister beeping from his room. I was completely exhausted (no change there then!!) and thought I had got out of bed and was with him in his room when I became aware that the beeping was still going on and I hadn't got out of bed at all..I was still there. I was now in a panic that I had left it too long and that he might really have stopped breathing so I got out of bed and ran to his room. The beeping continued because I hadn't actually woken that time either....when, eventually I really DID wake up and really DID get to his room...the monitor had become detached and all was well with the Boy. It reminds me of the film with Leonardo di Caprio about dreams and levels of dreams possibly called Inception...I just didn't know what was real and what wasn't. Weird. M can actually wake himself up if he is having a bad dream. How does he know???? Dreams and sleep are interesting,..sometimes I have very busy dreams and wake up exhausted...sometimes I have lovely dreams and wake up all calm and serene. But I am not aware that I am dreaming, or if I am ,I am not aware that I am aware......or maybe it's just me. Oh well. All's well that end's well etc
The End
Saturday, 23 April 2016
just another sunny Saturday.....
So...the on-going saga of the Boy and the Garden Centre visit....this morning, having been awake with M for far too many hours to count, Jboy eventually consented to get into Velma (the car). Once in, we then had to decide where to go...the question wasn't really whether to go to a garden centre or not but rather 'which garden centre shall we go to?'. We decided on the far distant one with the library in the cafe...so off we went. The sun was shining, Jboy was happy and we sang along to the cd...what a happy bunch. On arrival at the GC, along with 7million other people, M and I tried to meander around the flowery bit but Jboy evidently remembered the cafe with the books because he was a determined fellow and marched past the rows of roses, perfect pansies and verdant violas straight to the cafe where he took up residence on a sofa by the window where he could watch not only the children in the playground outside but the road beyond where many cars and the occasional tractor passed by. Tea imbibed, scone demolished, Jboy's own special gluten free/dairy free cake chomped and we were off to explore the flowers..or in Jboy's case, the aquarium where he gazed with wonder and interest at the Koi and other related piscine creatures. Was he waiting for a live re-enactment of Nemo, one wonders???? Once we had managed to encourage him away from the watery depths of the aquatic department, we found many an interesting plantette but being the sensible folk that we are, we resisted (most of) them. Then,almost as if Jboy had realised that nothing else was of interest to him, he rushed us through the checkouts and into awaiting Velma. On our way home, the sun was still shining, we saw a train cross at the level crossing(it was a Red Virgin train so Jboy was beyond excited) and, because it was still so warm and sunny,we decided to stop off at a pleasant nature area and go for a walk.....we arrived, we parked, Velma settled down for a nap but Jboy had decided that enough jollity for one day was indeed enough. He became the refusnik that we know and love. He got out of the car. But that was as far outside as he was prepared to go. No cajolling, no cake bribery, no encouraging could persuade him to do anything other than get back into Velma - so this we did and home we came.And here we are. Jboy has fallen asleep, M is in the garden and I am here, having a chat with you. Hope you have had a fab day.
I wonder what delights await us tomorrow!!
The End
PS sorry this is identical to a fb post...so apols if you do FB as well!!!!
PS sorry this is identical to a fb post...so apols if you do FB as well!!!!
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